Friday, June 11, 1999

[T-10 Yrs] Nasal CPAP and Idiopathic Hyperinsomnia

So that was then I discovered CPAP. I was already off to a rough start. The CPAP machines then were primitive compared to the ones today. They made a lot of noise, there was no humidifier, the masks were barely functional. I persisted with them though my compliance was not that great. This went on for 3 years, leading upto 1999.

My daytime sleepy symptoms had not become better. I went back to my PCP and he sent me to a local sleep specialist in San Jose.

This doc looked at my report from 3 years ago. Interestingly enough the study indicated that I had only 27 Obst Apneas, RDI of only 10 and an apnea index of 1 over a 6 hour study window. Looking at the graphs, the Oxygen saturation level is well over 95% except for a couple of times. The sleep specialist physician in San Jose (whose name I will omit) concluded that I had Idiopathic hypersomnia and NOT OSA. Idiopathic means "I don't know the reason for your problem".

Recently I was reviewing my data with SeattleBill and he showed me that the doctor included one critical piece of data 151 TA without respiratory events. He thought that I may have a loose sensor lead or some such thing during this study, because all my subsequent studies showed severe OSA's. Of course I have had numerous overnight sleep studies at Cupertino and Stanford labs which proved beyond doubt that I had OSA (more later).

Anyway at that point I started exercising, lost some weight, slept on my side and learned to live with it.

2 comments:

  1. shows that there is no guarantee that CPAP will lead to weight loss. Sleep Apnea Blueprint

    ReplyDelete
    Replies
    1. Its been 8+ years since my surgery. I can unequivocally say that I have a ton more energy, lighter by about 10 pounds and easily the best shape of my life. I just completed my sixth half marathon in record personal time.

      Good luck with your idea of selling sleep apnea related exercise, hopefully it will help people with at least mild obstructions.

      Delete